Fight Spinal Muscular Atrophy (SMA)

FightSMA is an international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two.

Anyone interested in learning more about spinal muscular atrophy should first visit the FightSMA Spinal Muscular Atrophy Guidebook. It contains the most up-to-date information about SMA type 1, type 2, type 3, and type 4 / adult onset, written by one of the leading experts on the neuromuscular disease. The guidebook also provides information on diagnosis and tests and spinal muscular atrophy treatment, as well as help and support for spinal muscular atrophy parents.

We hope you find our website to be helpful, and will consider joining the fight. Please don't hesitate to contact us if you have any questions.

All the best,

Martha Slay
President, FightSMA

FightSMA News and Events

• SMA Treatment Acceleration Act
• August Grassroots Update
• Do you see your Representative's name on this list? August Targeted Grassroots Efforts
• Summer Challenge: 150 Cosponsors
• SMA Families
• Studies show concern about cardiac defects in SMA patients
• Share Your Stories!
• Help the Investigation of the Impact of Nutrition on SMA
• Research News
• Funding opportunities for SMA researchers
• FightSMA Awards $250,000 Grant to Gene Researcher at The Ohio State University
• CML HealthCare and FightSMA Canada Join Forces in the Fight Against Spinal Muscular Atrophy
• FightSMA Canada, CML HealthCare and The Children's Hospital of Eastern Ontario Foundation Unite to Provide $500,000 Research Grant
• Learn more about the 2010 FightSMA Annual Conference: The Good Fight held in Washington, DC
  

Invisible Heroes

View the powerful "Invisible Heroes" video by clicking the image to the right. To view the full 13-minute version, click here.