Fight Spinal Muscular Atrophy (SMA)

Fight SMA is an international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two.

Anyone interested in learning more about spinal muscular atrophy should first visit the Fight SMA Spinal Muscular Atrophy Guidebook. It contains the most up-to-date information about SMA type 1, type 2, type 3, and type 4 / adult onset, written by one of the leading experts on the neuromuscular disease. The guidebook also provides information on diagnosis and tests and spinal muscular atrophy treatment, as well as help and support for spinal muscular atrophy parents.

We hope you find our website to be helpful, and will consider joining the fight. Please don't hesitate to contact us if you have any questions.

All the best,

Martha Slay
President, Fight SMA

Spinal Muscular Atrophy News and Events

• The second annual Taylor's Hope 5K for SMA is coming up on May 17 in Midlothian, Virginia. Click here for information on this event.

• The Joshua's Buddies 9th Annual Run/Walk/Roll is coming up! Take part in this great Spinal Muscular Atrophy fundraiser in Troy, Michigan on June 21. For more details, visit the Joshua's Buddies chapter page.

• SMA Treatment Acceleration Act: Click here for a list of sponsors and to download a copy of the legislation.

• Fighter Mom™ Friday: This day-long event on May 9, 2008 in New York City (sponsored by Fight SMA and the Toy Industry Foundation) was an overwhelming success. For those who were unable to attend, look for content from the workshop to be available on the FighterMom website in the coming weeks.

Spinal Muscular Atrophy news headlines from the web: