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Archive for February 2007 – Page 2

National Advisory Neurological Disorders and Stroke Council Meeting

Posted: February 14th, 2007 | By: Staff | No Comments
Wednesday, February 14th, 2007

Despite the questionable weather in Washington D.C. the National Advisory Neurological Disorders and Stroke Council (NANDSC) is still scheduled to meet February 15-16, 2007.

The NANDSC holds three regular meetings each year (February, May, and September) and each lasts about a day and a half. Each meeting has a portion open to the public, with the reminder of the meeting closed to the public as the council reviews grant applications. The National Institute of Neurological Disorders and Stroke (NINDS) cannot award a research grant unless the application has received the approval of the NANDSC. In addition to reviewing applications, one of the NANDSC’s main roles is “to advise the Institute on policy and procedures affecting the extramural research programs.” The SMA Project was established by NINDS to help advance spinal muscular atrophy research.

Click here to read the meeting’s agenda.

Comments (0)
Categories : Spinal Muscular Atrophy Science and Research

Two Exciting Events This Weekend

Posted: February 13th, 2007 | By: Staff | No Comments
Tuesday, February 13th, 2007

FightSMA has two exciting events taking place this weekend. Both Birmingham and Atlanta will hold FightSMA’s signature fundraisers: SMAsquerade. Birmingham’s event will be held at Ted’s Garage, a 1920′s warehouse with classic and vintage cars on display, and guests will enjoy the music of the band Laval Lamp. Atlanta’s SMAsquerade will be help at The Trolley Barn, the restored home of Atlanta’s first electric street railway line, and guests will enjoy the sounds of the band Livin’ Large. Both SMAsquerades will take place Saturday, February 17th and will have silent auctions.

A SMAsquerade is just one of the weapons FightSMA has in its arsenal as the battle against spinal muscular atrophy (SMA) wages. Funds raised by SMAsquerades around the country go to further SMA research towards a treatment and a cure.

To learn more about Birmingham’s SMAsquerade, click here.

To learn more about Atlanta’s SMAsquerade, click here.

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Categories : Spinal Muscular Atrophy Events

Journal Articles about Spinal Muscular Atrophy Research

Posted: February 12th, 2007 | By: Staff | No Comments
Monday, February 12th, 2007

Recently, a number of journal articles about Spinal Muscular Atrophy have been published. Below are links to the abstracts of a few of these articles, including some from researchers who have been funded by FightSMA. A subscription to the publishing journal is required to read the full text of the articles, but the abstracts will help you decide if you are interested in reading more.

Recent Advances in Respiratory Care for Neuromuscular Disease
by Anita K. Simonds
Chest. 2006; 130:1879-1886.
Click here to read the abstract

Axonal-SMN (a-SMN), a protein isoform of the survival motor neuron gene, is specifically involved in axonogenesis.
by Veronica Setola, Mineko Terao, Denise Locatelli, Stefania Bassanini, Enrico Garattini, and Giorgio Battaglia
Proceedings of the National Academy of Sciences. 2007; 104:1959-1964.
Click here to read the abstract

Preclinical validation of a multiplex real-time assay to quantify SMN mRNA in patients with SMA.
by L. R. Simard, M-C Bélanger, S. Morissette, M. Wride, T. W. Prior, and K. J. Swoboda
Neurology. 2007; 68:451-456.
Click here to read the abstract

Comments (0)
Categories : Spinal Muscular Atrophy Science and Research

Lifespan Respite Care Act of 2006 passes House and Senate

Posted: February 8th, 2007 | By: Staff | No Comments
Thursday, February 8th, 2007

Introduced multiple times by Senator Hillary Rodham Clinton, the Lifespan Respite Care Act of 2006 was approved by both the U.S. House of Representatives and Senate in December of 2006. In her statements to the Senate, Senator Clinton said, “Family caregivers provide 80 percent of all long term care in the United States. But…you don’t get real financial help unless you put your loved one in a nursing home. There is something wrong with that.” Supported in Congress by Senators such as Clinton, Warner, and Snowe, and by Representatives such as Ferguson and Langevin, the Lifespan Respite Care Act of 2006 provides almost $300 million over five years to increase access to respite care services for caregivers of family members with special needs conditions. In the words of Senator Clinton, “I’m grateful that we’re going to be passing this legislation and giving some assistance to these courageous men and women, these parents, these children, these grandparents, these spouses.”

Click here to read Senator Clinton’s announcement of the Act passing

Comments (0)
Categories : Spinal Muscular Atrophy Families and Friends

A Conversation with Hannah

Posted: February 5th, 2007 | By: Staff | No Comments
Monday, February 5th, 2007

While covering the musical events of the 8th Annual Hannah’s Buddies Charity Classic to benefit spinal muscular atrophy (SMA) research, including performances by John Bell of Widespread Panic, Bobby Lee Rodgers and The CodeTalkers, Colonel Bruce Hampton and the Aquarium Rescue Unit, and Outformation, a commentator for MoBoogie.net sat down for a conversation with Hannah, the namesake of the event.

Click here to read the interview

Comments (0)
Categories : Spinal Muscular Atrophy Events, Spinal Muscular Atrophy Families and Friends
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