Layout Image

Please support our fight.
Donate to FightSMA.
  • Home
  • SMA Guidebook
    • What is SMA?
    • SMA Fact Sheet
    • SMA Type 1
    • SMA Type 2
    • SMA Type 3
    • Adult Onset SMA
    • SMARD1
    • Diagnosis & Tests
    • Symptoms & Treatment
    • SMA Resources
    • SMA Doctors
    • Non-Medical Help
    • SMA Multimedia
    • Friends in the Fight
  • Research
    • Research Legacy
    • SMA Gene Therapy
    • 2009 Grant Awards
    • Past Grant Awards
    • SMA Research RFP
    • Articles & Resources
    • SMA Clinical Trials
    • Funded Institutions
    • Disease Directory
  • Chapters
  • Events
    • Annual Conference 2012
    • Annual Conference 2011
    • Annual Conference 2010
    • Annual Conference 2009
    • Annual Conference 2008
    • Annual Conference 2007
    • Annual Conference 2006
    • Annual Conference 2005
  • Capitol Hill
    • SMA Coalition
    • Be a Helping Hand
    • Contact Your Representatives
  • About FightSMA
    • Annual Reports
    • Board of Directors
    • International Advisory Council
    • Scientific Advisory Committee
    • Privacy Policy
    • Spinal Muscular Atrophy Newsroom
    • Contact FightSMA
  • Blog
  • Please Give
    • Make a Miracle
    • Other Ways to Help
    • Merchandise

Archive for June 2007 – Page 2

Fighting Back Podcast Feedback Roundup

Posted: June 9th, 2007 | By: Staff | No Comments
Saturday, June 9th, 2007

We’ve gotten a bit of feedback since launching Fighting Back almost two months ago, and we figure it’s time to share some of it. The podcast features inspirational stories about people and families fighting serious or incurable diseases. It’s produced for Fight SMA and FighterMom.

First up is a voice mail from a fellow podcaster. Dale from Tech Talk for Families called our feedback hotline at 206-984-3669 and left a message, which is loaded into the flash mp3 player below so everyone can hear it.

fb-feedback-5-30-07.mp3

Thanks for listening, Dale!

Next up are some comments received via iTunes:

  • (Rating: 5 stars) This is a well-produced cast about living with and beating diseases. Whether you suffer from such a thing or are completely healthy, there’s always something inspiring to be had from listening to the triumphs of others. Worth your Time.
  • (Rating: 5 stars) Great Show! Tough topic and very inspirational! Well done!
  • (Rating: 5 stars) Dealing with these topics is important, yet incredibly difficult. What an inspiration for those who struggle or have families who struggle with incurable diseases.

Thanks to all of those who have left feedback for us. If YOU have a question or comment, or would like to have your story told on Fighting Back, please email or (even better) leave a message on our feedback hotline at 206-984-3669!

Comments (0)
Categories : General Information

Twins With SMA Celebrate Second Birthday

Posted: June 9th, 2007 | By: Staff | No Comments
Saturday, June 9th, 2007

A big double belated “Happy Birthday” goes out to Sam and Alex Bolton.  They’re the inspiration for the British organization and website Twins With SMA.  They turned two years old at the end of May.

Comments (0)
Categories : Spinal Muscular Atrophy Families and Friends

Assistive Technology Allows SMA Teen to Use “One Thumb to Rule Them All”

Posted: June 3rd, 2007 | By: Staff | No Comments
Sunday, June 3rd, 2007

Assistive technology has advanced by leaps and bounds, allowing those with seriously debilitating illnesses to do more.  A company in the Netherlands called AssistiveWare recently released a video showing how Mchael Phillips, a teen with SMA, can play video games, instant message, and even write a book … all using only his thumb.  It’s amazing technology.

Learn more about Michael on the AssistiveWare website, and be sure to check out the video.

Comments (0)
Categories : Spinal Muscular Atrophy Science and Research, Spinal Muscular Atrophy Videos
« Previous Page

Search:

Navigation

Spinal Muscular Atrophy Blog
Fight SMA Home
Fighting Back Podcast

 Blog feed
Podcast feed

iTunes Users: Visit the Fighting Back Podcast Store

Connect

Keep up with FightSMA:
• Twitter
• Facebook
• YouTube
• SMASpace
• Email FightSMA

Awards

Recent Posts

  • Don’t Forget: Rock’N Out for Isabella Is This Weekend
  • Videos From the 2012 FightSMA Annual Research Conference: Michael Calise
  • How to Help Us Fight SMA
  • Thank You Avery
  • Meet Avery and her Bucket List

Categories

  • Featured
  • Fighter Kids
  • FighterMom Disease Advocacy News
  • FighterMom News
  • FightSMA Articles
  • FightSMA Featured Families
  • FightSMA News
  • General Information
  • Podcasts
  • SMA Treatment Acceleration Act
  • Spinal Muscular Atrophy Events
  • Spinal Muscular Atrophy Families and Friends
  • Spinal Muscular Atrophy News Stories
  • Spinal Muscular Atrophy Science and Research
  • Spinal Muscular Atrophy Videos
  • Uncategorized
  • Webisodes
Spinal Muscular Atrophy | FightSMA
Copyright © 2012 All Rights Reserved
Site developed for FightSMA by EndGame PR
Twitter Facebook SMASpace YouTube Email Donate
Home | What is SMA? | Research News | Chapters | Events | SMA Merchandise | SMA Coalition | Make a Donation | Spinal Muscular Atrophy Type 1 | Spinal Muscular Atrophy Type 2 | Spinal Muscular Atrophy Type 3 | Spinal Muscular Atrophy Type 4 | Spinal Muscular Atrophy Diagnosis | Spinal Muscular Atrophy Symptoms | Spinal Muscular Atrophy Parents | Spinal Muscular Atrophy Blog