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Archive for May 2009 – Page 2

Bill Strong: iParenting.com’s Dad of the Month

Posted: May 11th, 2009 | By: Staff | No Comments
Monday, May 11th, 2009

iParenting.com has chosen Bill Strong as this month’s Dad of the Month. After his daughter Gwendolyn was diagnosed with spinal muscular atrophy at about 6 months of age, Bill and his wife Victoria decided that despite the devastation they felt, they would not sit back idly. The Strongs contacted specialists around the country and began working with a team of doctors at Stanford University. They started a blog to “chronicle their journey with SMA” and are working on an addition website to help other families who receive life changing diagnoses. They have founded The Gwendolyn Strong Foundation to increase awareness of SMA and to fund much needed research. And the Strongs started what they might be best known for: the online Petition to Cure SMA to garner signatures in support of the SMA Treatment Acceleration Act, which was just recently reintroduced in the House of Representatives (H.R. 2149).

FightSMA congratulates Bill on the recognition of his work, and thanks both he and Victoria for all they have done!

Click here to read the full article.

Comments (0)
Categories : SMA Treatment Acceleration Act, Spinal Muscular Atrophy Families and Friends, Spinal Muscular Atrophy News Stories

Meet Jimmy Curran: Going to college with SMA

Posted: May 5th, 2009 | By: Staff | No Comments
Tuesday, May 5th, 2009

Jimmy CurranThe Temple News, a student publication of Temple University, profiled sophomore Jimmy Curran in the May 5th issue. The third of four children, Curran is the only child in his family who has type 2 spinal muscular atrophy (SMA) – a genetic neuromuscular disorder that affects motor neurons in the brain stem and spinal cord and disrupts the production of protein necessary to maintain muscle strength.

Despite being confined to a wheelchair and suffering muscle weakness, Curran hasn’t let the effects of the disease dramatically change his life. He is majoring in business at Temple University and plans to own his own business in the future. Just like any other college student, he enjoys hanging out with his friends and listening to music.

To read the entire article, click here.

Comments (0)
Categories : General Information, Spinal Muscular Atrophy Families and Friends, Spinal Muscular Atrophy News Stories
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