
All too often, news in the SMA community is full of sadness and heartache as spinal muscular atrophy (SMA) takes its toll. This makes celebrating happy stories that much more important. Here are two such stories.
The Children’s Wish Society of Malaysia (CWS) and MPH Group of Companies have made 13 year old Alicia Loh’s dream come true. Diagnosed with type 2 SMA ten years ago, Alicia has been enjoyed reading books and writing short stories. While visiting America for spinal surgery, Alicia wrote her own book entitled The Last Chapter about a girl trying “to understand the meaning of life.” Now, this book will be available for sale in MPH bookstores around Malaysia. For the full story, click here.
In Connecticut, the Takacs family received an amazing Christmas gift. A community of strangers came together to create a special portable bed for 4 year old Ethan who has type 1 SMA and had outgrown his crib. Ethan’s dad had gone to Hemingway Custom Cabinetry to investigate how much a special bed would cost to make. After learning more about Ethan and his needs, Hemingway Custom Cabinetry and their vendors donated time and materials to create the bed which they delivered last week. To read more, click here.
If you have more uplifting stories to share as we move into the new year, share them with FightSMA on Facebook or Twitter.



