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Archive for Spinal Muscular Atrophy Videos – Page 3

FightSMA Fall Party a SMAshing Success!

Posted: December 3rd, 2009 | By: Staff | No Comments
Thursday, December 3rd, 2009

Friends old and new gathered on November 21, 2009 at Richmond’s newest waterfront restaurant, the Boathouse at Rocketts Landing, for the 2009 FightSMA Fall Party to celebrate and help raise awareness and critical research dollars for spinal muscular atrophy.

Guests at the party enjoyed live music by local Richmond favorite, DJ Williams Projekt, while sipping cocktails and enjoying Boathouse specialty hors d’oeuvres. When they weren’t on the dance floor, guests were able to bid on a robust variety of silent auction packages provided by:

  • Plus1Tickets
  • By Invitation Only
  • DowntownShortPump.com
  • Lemaire
  • Roan boutique
  • Heist jewelry
  • MacLaren Jewelers
  • real life studios
  • Hayes & Fisk: The Art of Photography
  • Appliance Solutions
  • Visual Arts Center of Richmond

The Boathouse at Rocketts Landing and Shockoe Bottom’s Frame Nation provided gift certificates for the raffle.

When guests at the Fall Party wanted to let their hair down, they grabbed their friends and climbed into the on-site photo booth provided by Virginia Photo Booths and More to create a memorable keepsake to take home from the party. One guest said, “the photo booth was such a cute touch and so nice that it was customized with the event info.”

FightSMA President and Co-Founder, Martha Slay, briefly addressed the crowd to thank them for their support, update them on the progress being made, and encourage them the continue their efforts. A portion of her speech can be heard in the video recap of the event.

It was a fantastic and fun evening, and most importantly, for a wonderful cause: to help fight spinal muscular atrophy. Another attendee declared, “lovely evening, gracious hosts, beautiful people, a gorgeous setting and a great cause. The perfect evening. You have done it again!”

Still photography provided by Sam Perry Photography.

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Categories : FightSMA News, Spinal Muscular Atrophy Events, Spinal Muscular Atrophy Videos

Fight SMA Launches The Thumb Drive

Posted: July 7th, 2009 | By: Staff | No Comments
Tuesday, July 7th, 2009

This week, Fight SMA sent packets to 30 medical supply companies across the Central Virginia area.  The effort, called “The Thumb Drive”, hopes to raise money for spinal muscular atrophy research.  The below video was included in the packet, and was loaded onto a flash memory storage drive, aka a “thumb drive”.

To join the Thumb Drive, please donate using this card (pdf), or by clicking here.

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Categories : FightSMA News, Spinal Muscular Atrophy Videos

SMA Conference 2009 Video Now Available

Posted: June 10th, 2009 | By: Staff | No Comments
Wednesday, June 10th, 2009

The 2009 FightSMA Annual Conference featured a number of firsts, including the first-ever webcast of the event. Now, the video from that webcast is available for online viewing and download! You can watch it on the Conference 2009 page here at FightSMA. Just follow this link: FightSMA Annual Conference 2009

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Categories : Spinal Muscular Atrophy Events, Spinal Muscular Atrophy Videos

2009 FightSMA Annual Families and Friends Conference Slideshow

Posted: May 20th, 2009 | By: Staff | No Comments
Wednesday, May 20th, 2009

FightSMA Annual Conference Logo
FightSMA has produced a slideshow of photos from the 2009 FightSMA Annual Families and Friends Conference: The Good Fight held April 27-28 in Washington, D.C.  Please check out the images below.  To read more about the event, please visit the 2009 Annual Conference page!

Thank you to our attendees, corporate sponsors, Thriving with SMA panelists, and photographer Ralph Alswang.



Comments (0)
Categories : FightSMA News, General Information, Spinal Muscular Atrophy Events, Spinal Muscular Atrophy Families and Friends, Spinal Muscular Atrophy Videos

Fight SMA Featured in Upcoming Ads from Mondial Assistance

Posted: December 11th, 2008 | By: Staff | No Comments
Thursday, December 11th, 2008

Richmonders should pay a little closer attention than usual to commercial breaks on WWBT-TV (NBC 12) in the coming weeks.  That’s because Fight SMA will be featured in a 30-second spot on that station that will air throughout December.  The spot is part of a partnership between Mondial Assistance and WWBT.  The “World of Good” promotion honors people in the community who do a world of good for others.  Fight SMA President Martha Slay was chosen as one of these people. 

We’re very proud of this honor, and very grateful to Mondial Assistance and WWBT for giving us this opportunity to spread the word about Fight SMA!

You can watch the commercial below:

Here is a list of the air dates and times on WWBT-TV, NBC12:

12/13/08: 12 News on Saturday 9-10am (2x)
12/16/08: 12 News at Noon 12-12:30pm
12/16/08: News at 5:30pm
12/17/08: 12 News at Sunrise 5am-5:30am
12/17/08: 12 News at Noon 12-12:30pm
12/18/08: 12 News Today 6-7am
12/18/08: Dr. Phil 3-4pm
12/22/08: Dr. Phil 3-4pm
12/22/08: 12 News at 6pm-7pm
12/23/08: 12 News at 4pm-4:30pm
12/26/08: 12 News at 4pm-4:30pm

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Categories : FightSMA News, Spinal Muscular Atrophy Videos
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