Fight SMA’s Fighter Mom Program was recently profiled in Exceptional Parent Magazine.  Fighter Mom provides support, advice and information for parents fighting to bring an end a disease or condition.  It was founded by Joe and Martha Slay, as they saw more and more parents trying to form nonprofits or raise money for research or awareness.  Here’s an excerpt from the article:

How can FighterMom assist parents of a child with SMA? The FighterMom program grew out of a decision by moms fighting one particular disease to share what they’d learned with any mom fighting any kind of health-related foe that has attacked their child. They believe that the “lessons and experiences—though taught in the battle against one disease—could have universal application. The specifics of one disease might be unique, but the trials, the emotional highs and lows, the dark days, and the victories could be those of any mom.”   Based on that belief, one of the best resources FighterMom has to offer is The FighterMom Manual. It was created as a “survival guide” of reference tools to assist mothers and others taking on the challenge of “doing something” when their daughter, son, grandchild, niece, or nephew has been diagnosed with SMA or any other life-threatening chronic disease. Information is provided that will help readers determine the resources they will need to take on the role of a fighter mom.

Read the entire article on the Exceptional Parents website.  Simple registration is required.