Jasmine and her dad, "Shrek" (click for larger version)
We’d like you to meet Jasmine Rankin and her Dad. Jasmine is a beautiful and special young adult from the United Kingdom with SMA Type 2, who wrote to us because she wanted her family to be the first of our FightSMA Featured Families. Wish granted! Here’s what Jasmine had to say:
This is a photograph of me and my dad on my 18th Birthday, I was obviously a bumblebee and he was Shrek! I don’t know what I’d do without Shrek. He’s like my best friend as well as my dad! I tell him everything, and he would do anything for me. I’m so grateful to have someone so special in my life.
We’re grateful to have Jasmine and her dad as our first FightSMA Featured Family!
If you’d like to be a FightSMA Featured Family, just click here and sign up!
I look up to you jas, you inspire me and made me the person I am today! Your so brave and I love you so much <3
Hi jasmine, you look like a lovely bee! thought your write up was really sweet. my little girl was diagnosed with sma type 2 last may, x
Hi guys, thank you for your comments that’s ever so kind. Hayley if you’d like to ever talk find me on facebook, i’m happy to help you should you need someone to talk to
xxxxxx
Hi Jasmine, I just read about you in The Times. 18 eh! Welcome to the world of adulthood. Just think, you can now vote, joy!
I can imagine how frustrating it must be having to keep having to explain the same things over and over again to the powers that be. But just in case this hasn’t been suggested…..
Would it be a good idea to have everything you need to explain written down so that it can be emailed to whoever meeds the information. The same information could also be uploaded onto a blog for the same people to view. Just a thought, and It might be a way round your predicament.
I’m probably stating the obvious, but I thought I’d drop you a line anyway.
bye bye for now
Martin x