Time for another FightSMA Featured Family! This time we get to meet a wonderful woman named Natalia Escárate, from Valparaíso, Chile:
Natalia (click for a larger version)
I’m 30 years old, I was diagnosed when I was 3 or 4 through a biopsy, but in 2009 I was subjected to genetic testing. When I was a child I received physical and hydrotherapy, but currently I just go to medical checkups (Physiatrist and Bronchopulmonary) about twice a year because I suffer a lot from pneumonia. I studied English Translation at the university. I’m working as a freelance English teacher at the moment. I work mostly with children because I really love them!
Thanks so much to Natalia for writing in!
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I have a same story as you, I studied cartoon Animation at the university, now I make cartoon for children because I really love them!
Thank you Natalia for sharing. You give us parents with young children much needed hope for a bright future! Best of luck to you!
Tigran, Thanks 4 your comment! so sweet! I want to know you more, if you want!
Michele, I’m sure that your child will have a wonderful future!!! Best luck for you too! and here I am to anything you need!
i know the pain of yours because i too suffering with the same disease
u r gorgeous
Hello Natali
Thanks for sharing that information with us, I have type 3 and I would like to get to know you more
thankyou for hope i have 2 young children at home with sma and you gave me and my husband hope !!!!!!!!!!! (:
Hello Natalia,
thank you for sharing your story. One of my friend who has SMA is now in hospital and she is suffering from pneumonia. We are from Poland. She is 52 years old and her situation is realy bad, because she has a lot of problems with respiration. The doctors can’t realy help… Me and all the people who are supporting our friend with her problems will be glad for some advices how to help her with the respiration.
Thank you a lot for help!