The American Society of Gene Therapy, or ASGT, has posted abstracts and session details from its recent 11th Annual Meeting. Fight SMA was one of five patient advocacy groups to present at the meeting. The president of the ASGT posted a letter on the organization’s website. Here’s an excerpt:

A final highlight was the outstanding evening symposium presented by a team of five Patient Advocacy Groups. ASGT would like to welcome the ALS Association, Families of SMA, Fight SMA, the Muscular Dystrophy Association, and the SMA Foundation and we hope that our meeting will be the catalyst for productive collaborations between our members and the clinicians and patients your fine groups are representing.

You can read session overviews here, and abstracts here.

Tags: disease research, health, medical, science, sma, spinal muscular atrophy

Fighting Back Podcast … is back! This quarterly program provides information for and inspirational stories about people and families fighting against serious or incurable diseases or conditions. It’s produced by Fight SMA and FighterMom.

In this episode, host Steve Mullen talks with Audrey Gordon, President and Executive Director of the Progeria Research Foundation. Audrey and her sister, Dr. Leslie Gordon, founded PRF after Leslie’s son was diagnosed with the disease. Progeria is a disease that many have heard of, even if they don’t know its official name. It causes rapid aging in children, eventually leading to premature death. In Fighting Back Podcast Episode 12, Audrey tells us more about the disease, as well as how and why she’s fighting it.

Also in this episode of Fighting Back Podcast, we have information about the upcoming FighterMom Friday!

To listen to Fighting Back Podcast, you have several options. You can use the Flash mp3 player above, load the Fighting Back Podcast Feed into your favorite feed reader, subscribe via iTunes or other podcast directories, or simply use the download link above to load the file onto your computer.

If you have feedback, a comment or question, or are interested in having Fighting Back tell your story, please contact us via the Fight SMA contact page. You can also leave a message in the form of a comment on this blog as well.

Thanks for listening!

Tags: fightermom, health, medical, podcast, progeria, science