Fight SMA Unveils Spinal Muscular Atrophy Guidebook
We have unveiled new content on FightSMA.org that every SMA parent should know about. The Fight SMA Spinal Muscular Atrophy Guidebook is a compilation of the latest information available about the genetic disease that occurs in as many as one in 6,000 births, all in easy to understand language. We have gathered together in one place the following information:
Fight SMA Spinal Muscular Atrophy Guidebook
What is Spinal Muscular Atrophy (SMA)?
Spinal Muscular Atrophy (SMA) Fact Sheet
Type 1 Spinal Muscular Atrophy
Type 2 Spinal Muscular Atrophy
Type 3 Spinal Muscular Atrophy (Kugelberg-Welander Disease)
Type 4 / Adult Spinal Muscular Atrophy
Diagnosis and Tests for Spinal Muscular Atrophy
Treatment for Symptoms of Spinal Muscular Atrophy
Help and Advice for SMA Parents
Some of this information was available on the Fight SMA site in the past, but we’ve recategorized it and compiled it in one place, because we know the last thing SMA parents have time to do is search for answers to their questions. Think of it as your field manual to this terrible disease. We’ve even provided a handy link to the entire guidebook in PDF format, so it can be printed out and read offline. We hope this guidebook is a useful resource for you. If you feel something is missing, please leave a comment in this post about it, or email us via this contact form.
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