Bill Strong: iParenting.com’s Dad of the Month
iParenting.com has chosen Bill Strong as this month’s Dad of the Month. After his daughter Gwendolyn was diagnosed with spinal muscular atrophy at about 6 months of age, Bill and his wife Victoria decided that despite the devastation they felt, they would not sit back idly. The Strongs contacted specialists around the country and began working with a team of doctors at Stanford University. They started a blog to “chronicle their journey with SMA” and are working on an addition website to help other families who receive life changing diagnoses. They have founded The Gwendolyn Strong Foundation to increase awareness of SMA and to fund much needed research. And the Strongs started what they might be best known for: the online Petition to Cure SMA to garner signatures in support of the SMA Treatment Acceleration Act, which was just recently reintroduced in the House of Representatives (H.R. 2149).
FightSMA congratulates Bill on the recognition of his work, and thanks both he and Victoria for all they have done!
Click here to read the full article.
Tags: petition to cure sma, petitiontocuresma.com, sma, SMA treatment acceleration act, spinal muscular atrophyShare This Post Via Email or Social Bookmark:


