FightSMA - Accelerating a cure for spinal muscular atrophy HomeContact Us FightSMA Home

Congressman Patrick Kennedy Helps Swing Against SMA

Participants in a recent fundraiser in Cranston, Rhode Island fought against spinal muscular atrophy with golf clubs, and a big supporter from the U.S. Congress helped them.

Fight SMA’s Rhode Island chapter, Corinna’s Angels, organized the 5th Annual Swing Against SMA Golf Tournament. In attendance was Rhode Island Congressman Patrick Kennedy (pictured to the right with the Calise family - click the picture to see a larger version), who is a supporter of not only Fight SMA but is also a key sponsor of the SMA Treatment Acceleration Act.

“When Congressman Kennedy learned that he had a chance to champion our bill to help find a treatment or cure for SMA, and to help our children who fight this disease daily, Congressman Kennedy stepped up and accepted the invitation,” said tournament organizer Michelle Calise. “With continued support from our families and through the hard work and dedication of Congressman Kennedy, we look forward to the SMA Treatment Acceleration Act becoming law by the end of 2008, and granting us the funds we need to bring this deadly disease to its knees.”

We thank Congressman Kennedy for his participation in the event, and for his continued support!

Please help us and all of the SMA Community represented by Miracle for Madison, Families of SMA, Peyton’s Pals, SMA Angels, SMA Support, MDA and The SMA Foundation continue to build support for the SMA Treatment Acceleration Act. A list of our current sponsors is posted here. For more information on how you can personally become involved in the fight to defeat Spinal Muscular Atrophy and open doors for other neurodegenerative diseases like ALS (Lou Gehrig’s Disease), Alzheimer’s Disease and Parkinson’s Disease, please contact Caroline Gibson, Fight SMA Public Affairs Coordinator, by using our contact form.

Technorati Tags: , , , , , ,

Share This Post Via Email or Social Bookmark:

No Comments »

No comments yet. Be the first!

RSS feed for comments on this post. TrackBack URI

Leave a comment

Line and paragraph breaks automatic, e-mail address never displayed, HTML allowed: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <code> <em> <i> <strike> <strong>

Required*