If Your Child Is Diagnosed With SMA
We have tried to identify sites with information that will help you through this very difficult time. There are decisions you can make and options you can exercise now that will greatly benefit your child. You are not powerless. There are resources available. We want to help you gather together all that you need to provide the best possible care for your child.
If you have a question that is not answered here, a member of our Scientific Advisory Committee can answer questions. We are also compiling a list of leading pediatric neurologists and other specialists in the country. All of these physicians are recommended by our scientific advisors.
After you have reviewed this information, please let us know if there are ways we can expand these resources to better serve you and other parents in the future.
All the best,
Martha Slay
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