Everyone is talking about Avery. Avery is a beautiful five-month-old girl from Texas who has SMA. Her parents have created a “bucket list” for her, with things they want her to see and do before the disease takes her away. Their progress on the list is being chronicled on a blog started by Avery’s dad, called Avery’s Bucket List. At the end of each post on that blog, the family asks people to donate to FightSMA, for which we are eternally grateful.
Avery and her family at the ballgame (click the image to visit Avery's Bucket List blog)
In the last few weeks, the family’s efforts have gone positively viral, with attention coming from new and old media, including Good Morning America and Huffington Post. If you haven’t heard about Avery, we urge you to head over to her blog and take a look. The family is working to make sure Avery gets to experience as much as possible. The most recent items crossed off the list include visiting a baseball game, throwing out the first pitch, and getting to “shake hands with super hot baseball players!”
Sounds like Dad’s bucket list to me..ha. I have a 36 year old daughter with SMA Type 2 who is doing well, lives on her own and arranges for her own aides to come in to help cook/clean, get her in and out of bed etc. She works part time and is again going to school for a bachelor’s degree in business. She only recently had to put voice activated software onto her home computer. Very intelligent, pretty lady, couldn’t be more proud of her. She doesn’t complain about her lot in life. I hope to grow up to be like my daughter!
I worked with a child who is now in middle school who has SMARDS-1. Very intelligent, and a real joy to be around. Is wheelchair bound, but is learning to drive a motorized one to get around and be more independent. Loved every moment of my job working with this child, and would do so again in a heartbeat!
First and most importantly, what a beautiful little girl! I know her parents will have her live more life than most us ever get to do with the many years of life that are gifted to us. Second, Laura, what an insensitive comment on your part. Realize that this little baby has the most severe form of this disease and that your daughter is blessed to have made it to adulthood and is living a full and happy life. Kudos to her! But I really think your comment was out of line. This baby may not even have another year. Imagine having heard that when your little one was only 5 months old.
Anyway, Avery you are a beautiful princess. Most of us have to wait years to get our wings to become angels. You received them before you were even born. You are very special and may you experience the best life has to offer! XOXO
Love,
Christy
Go get em Avery! Our Corinna was given the same diagnosis at 8 months, today she is 13, an honor student, and just an awesome kid! We didn’t make a bucket list, we decided to take on the world one smile at a time. sma may shorten a life, but it doesn’t limit the quality , love, or spirit these kids or families have. You are in for one heck of a journey. Laugh as much as you can, and love with all your might. You will live richly, and without limits. My love to you Avery girl! Xoxoxoxo
Yes Muni Mama my family totally agrees that Laura’s comment was rude, unjust and very insensitive. Perhaps the editor of this blog may want to screen for future un called for comments such as this. As for you Sweet Avery we love you and follow your Blog and we are excited to see you living out the items you placed on your Bucket List. Your blessed with courage, strength and you have also been lucky to be born to two amazing people who love you deeply. We are proud of you sweet darling.
This story is heartbreaking. My thoughts and prayers go out to little Avery and the family. Have you looked into Chiropractic care for her?
I only just heard about Avery and she is already gone. You’re right, she did get to live a better life than most in the few short months she was on this earth. She had very loving parents who wanted to give her the world. Even if it sounds like dad’s bucket list, it’s because what parent doesn’t want to share all the joys of their life with their child? Wouldn’t you like to give them everything you can offer, every experience and memory you could share? They will definitely miss their baby girl, but they have nothing to regret after putting so much love into Avery’s life.
RIP precious Avery. Little Angel, you will be so missed.
Rest Well Avery
http://averycan.blogspot.com/2012/05/avery-lynn-canahuati-111111-043012.html#comment-form
Avery Lynn Canahuati 11/11/11 – 04/30/12
Hello everyone this is Avery’s father. Avery passed away yesterday sometime around 3pm due to pulmonary complications related to SMA. In short, one of her lungs collapsed and she went into cardiac arrest. I immediately performed CPR on her and was able to bring her back to life, but only for a brief period of time before she passed away shortly after arriving at the hospital. Avery’s passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctors appointment only three days ago. While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends. I’m going to share a note Avery gave me back when all of this started, but made me promise not to open until I knew the time was right…
I heard about SMA from Avery’s Blog. I never knew it even exsisted. Avery passed away yesterday!! RIP sweet angel and thank you soo much to her mom and dad for telling everyone and raising awareness!!!
[...] Staff | No Comments Wednesday, May 2nd, 2012 TweetIn the days since the world learned about Avery’s Bucket List and particularly since her passing on Monday, we’ve had many, many people reach out to us and [...]
My name is Jerry.I’ve been with Avery’s blog since 2012.I miss her too much as she is cute and beautiful.Dear Avery,I wish you,”REST IN PEACE…”
I never met you Avery but you and your parents have changed my life and hopefully we can change the world. Thank you.
Laura, I hope you think before you speak in the future.
I wanted to say Baby Avery has wings and no more suffering your daughter has touched my life and my family’s my daughter has CF and I knew when she was in nice you have taught me to make every moment count and not let a day go by without spending time with her. I am so sorry for your loss and hope you can continue to fight the disease as I am CF and my daughter is avery age and I hope a cure is found. You raised awareness to her and her friends as well. Thank you for allowing avery to be a part of my life.
[...] Texas. The race, held on Saturday the 18th, was a benefit for FightSMA in honor of Avery Canahuati. Thanks to the runner, a gentleman named Scott, we have a ton of pictures and a first-hand report [...]
laura dont take negative comments to heart i also try to make light of situations, sometimes its easier to deal with thehurt of dealing with this cruel life,i have lost a child to cot death and then my second was diagnosed with sma type 2, this has caused me the most insecure and uncertain feelings towards life that i could ever think… no parent in this world is able to feel and deal normally with the pain of losing a child before them as thats not how its meant to be, but neither should people be judgemental of peoples comments when no reaction is same as anothers. some people shut down some people end it all some people move on some people try humour laura was 1st person to comment, showing some thought and care into it it shouldnt be judged in bad way we all in our hearts have our own ways of sending our love thoughts and best wishes i am sorry if i offend people but all the negative reactions towards laura on this page is neither the time place or situation her comments may not be the same as yours but her heart is in the right and same place as yours as she living the same life as us my love to you avery and all your family bless you to the moon and back xxxxxxxxxxxxxxxxxxxx