The current economy, health issues, and other difficulties are keeping some from attending the 2009 FightSMA’s Families and Friends Annual Conference in Washington, DC. We are so sorry that these families cannot be with us, but we have some terrific news. This year we are pleased to offer remote access to a portion of the conference. On April 27th, the basic science update (5:00 – 6:00PM Eastern Time) and the Thriving with SMA Panel (6:30 – 8:15PM Eastern Time) will be webcast. Parents will be able to access the dynamic science and research update in real time from their home computers and join in the exchange with professionals who impact their children’s daily lives by chat room.

A limited number of spaces will be available for the webcast on a first come, first serve basis. If you would like to take advantage of this opportunity and sign up for one of the spaces, please email Heather Lennon by April 23rd.

For more information about the FightSMA Families and Friends Conference or about spinal muscular atrophy (SMA), please visit the FightSMA website at www.FightSMA.org.