By now, you’ve likely heard of the variety of nonprofits hoping to win grants from Pepsi, via the Pepsi Refresh Project.  We have another one you should consider supporting.  Hannah’s Hope Fund is an organization working toward a cure for Giant Axonal Neuropathy (GAN).  It’s a rare genetic disorder that slowly takes away one’s ability to walk, use one’s hands, speak, and swallow.  The disease is terminal.  GAN patients need a therapeutic gene delivered via the spinal cord, as SMA patients do.  As a result of this similarity, research into a cure for GAN benefits SMA patients, and vice-versa.

If Hannah’s Hope Fund wins the November Pepsi Refresh Project, it will be awarded $250,000 for gene therapy clinical trials.

To help, text the message “104051” to the number “73774” (it stands for Pepsi).  You can also vote online at  www.refresheverything.com/hannahshope.