Fight SMA Releases New “Collateral Benefit” Disease Directory
There’s a new page in the Fight SMA Spinal Muscular Atrophy Guidebook that anyone who is interested in orphan disease research should review. The “Guidebook” is a one-stop compilation of information on SMA. Parents of newly-diagnosed children, and even those who have known about spinal muscular atrophy for some time, can use it to answer the questions they might have about SMA.
The new page in the Guidebook is the Directory of Diseases Benefiting from SMA Research. It’s a list of the more than 20 diseases that receive “collateral benefit” from breakthroughs in the search for a cure for SMA. The list includes well-known disorders such as Parkinson’s and Alzheimers, as well as those that are lesser-known, such as Batten Disease and Niemann-Pick Disease. Included in the directory are links to websites where information about the individual diseases can be found. Fight SMA is inviting anyone with websites about these diseases to submit their sites for possible inclusion in the directory.
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