MDA Joins International Research Coalition
The Muscular Dystrophy Association (MDA), a funder of SMA research, has joined with France’s The Association Française contre les Myopathies (AFM), the U.S.’s Parent Project Muscular Dystrophy (PPMD), and the Netherland’s United Parent Project Muscular Dystrophy (UPPMD) to form Duchenne Research Collaborative International (DRCI).
According to the press release, in creating this coalition, these four groups “have made a commitment to cooperate, collaborate and communicate openly in support of projects to accelerate translational research into therapeutic options to treat DMD.” Also, the new DRCI has “a broader vision to serve as a model for collaboration in the battle against neuromuscular diseases by improving access to information about rare conditions, creating strong public/private partnerships and, ultimately, increasing the amount of funding available for disease research.”
