A quick update on the fallout from PerezHilton.com posting about Fight SMA on Monday, May 26:

As we told you in this blog post, the folks at PerezHilton.com recently began posting information about what they call “worthwhile causes” on their site every week or so. On Monday, Perez included Fight SMA in that list. The site posted a link to fightsma.org, a description of our organization and spinal muscular atrophy, and showed a video that we posted on YouTube about SMA sufferer Billy Therriault and his family.

Since that posting on PerezHilton.com, nearly 30,000 people have viewed the Billy Therriault video. It’s gone positively viral, and we’re thrilled about it! Additionally, thousands of new visitors have found the Fight SMA website and learned about this horrible disease.

Here’s just a sampling of the dozens and dozens of comments that have been logged on the PerezHilton site:

Smile says –
I was shocked to see sma awareness on this site. I think it’s great.  My niece died from this at the age of two. It’s an awful disease!!!! Thanks Perez!
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Kelly says –
Perez,
Thank-you for posting this wonderful video about our very dear friend Billy. My son will be 3 in June and also has Type 1 SMA and we live in the same town as Billy. These kids are the TRUE news out there. This IS very important and this disease does NOT discriminate. ANY celebrity…any PERSON reading this website could be a carrier of the SMA gene. While my child and EVERY SMA child is a wonderful blessing…this is a hard life and for your readers who don’t think it is something they should pay attention to, they are very wrong. The more information about SMA the better and the sooner we find a cure the better. Bravo for posting about this disease that affects my child and many others out there.
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Maggie says –
My eyes teared up watching that Video. I have two little boys of my own, and I feel blessed that they are healthy. To think that 1 out of every 40 people in the us carry the gene for sma is scary to think about. My heart goes out to the kids and families of the kids that suffer from sma….. I am going to donate we need to find a treatment.

If you haven’t seen the Billy Therriault video, you can view it on the front page of Fight SMA, or on YouTube. See the video everyone is talking about!!! If you haven’t seen the Perez Hilton post, you can find it here.