Home Grown How-To Videos for Spinal Muscular Atrophy
It turns out YouTube can be of more use than looking for silly videos. Brad Fisher’s daughter, Shira, has Spinal Muscular Atrophy Type 1. Shira is now two years old, and over the past few months Brad has posted several home grown how-to videos related to the things parents need to do to take care of their SMA kids. The videos run through the steps needed to perform a cough assist and change a “mickey button”. While Mr. Fisher isn’t a doctor, and you should always consult your doctor with questions about procedures, it’s extremely helpful to SMA parents to see how others perform these tasks.
Click here to view all of Shira’s videos on YouTube.
To learn more about Shira, visit her website.
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