FightSMA Chapter: FightSMA Connecticut

Billy

Katy and Scott Therriault
924 Cedar Road
Southport, CT 06890
E-mail: Click here

Past Events:

FightSMA Benefit
Date: June 11, 2009
Location: Home of Lee and Steve Hafner, Southport, Connecticut
Enjoy cocktails by the pool under Raj tents followed by dinner and dancing to the music of a New York DJ overlooking the Long Island Sound.
Attendees asked to contribute as they see fit.

To become an Angel Sponsor of this event or to make a donation, click here.

Fighter Mom Friday

	and
present

May 9, 2008
8:00 am – 5:00 pm
New York Palace Hotel
New York, New York

FightSMA and the Toy Industry Foundation are pleased to announce Fighter Mom™ Friday, May 9, 2008. The inaugural, day-long workshop will take place at the breathtaking New York Palace Hotel in Midtown Manhattan.

Fighter Mom™ Friday is a celebration for all mothers (and others), whose children face any kind of disease, challenge or disability. It will be a day that provides a special service to moms and other caregivers who need tools to become truly proactive for their children. To kick off Mother’s Day weekend, FightSMA and the Toy Industry Foundation are honored to provide these special women with a day of their very own – a day to honor the Fighter Mom™. This day will be celebrated year after year.

The workshop will be a fun, educational and productive day. FightSMA and the Toy Industry Foundation have collaborated to provide a dynamic agenda for the day, including presentations, a celebrity guest speaker, panelists and toy demonstrations.

Press:

Two part feature by the Connecticut Post:

Capital News 9: A Big Battle for a Little Man (08-14-05)

The Therriault Family

Invisible Heroes: The Fight Against Spinal Muscular Atrophy

Billy and sister Alexandra

Billy and friend Ethan