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Fighter Mom Friday 2008

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FightSMA Logo and Toy Industry Foundation Logo
present
Fighter Mom Friday

May 9, 2008
8:00 am - 5:00 pm
New York Palace Hotel
New York, New York

New York Palace Hotel Courtyard
New York Palace Hotel

FightSMA and the Toy Industry Foundation are pleased to announce Fighter Mom™ Friday, May 9, 2008. The inaugural, day-long workshop will take place at the breathtaking New York Palace Hotel in Midtown Manhattan.

Fighter Mom™ Friday was a celebration for all mothers (and others), whose children face any kind of disease, challenge or disability. It was a day that provided a special service to moms and other caregivers who need tools to become truly proactive for their children. To kick off Mother's Day weekend, FightSMA and the Toy Industry Foundation were honored to provide these special women with a day of their very own - a day to honor the Fighter Mom™. This day will be celebrated year after year.

The workshop was a fun, educational and productive day. FightSMA and the Toy Industry Foundation collaborated to provide a dynamic agenda for the day, including presentations, a celebrity guest speaker, panelists and toy demonstrations.

Materials from Fighter Mom™ Friday

Testimonials from Fighter Mom™ Friday

"It was great to meet other parents who have the same pain, worries, and frustration you experience when you have a child with a disability. When your child is diagnosed with SMA, profound hearing loss, or any disorder, you as a parent have an urge to do all you can to make their plight much easier. I admire the parents I met who have done just that by going to Washington, or starting a walk to raise money for their cause."

"I feel encouraged to continue to fight for my son. It will be a fight for life but I now feel geared up for the challenges, THANKS FIGHTER MOM!"

"What an informative and elegant day! I learned so much and feel energized to continue my work."

"I found the whole day extraordinary"

"The parents and speakers were inspirational"

"My batteries were recharged!"

"I now see what Fighter Mom is all about."

"The elegance and well-planned coordination of the event was unparalleled to any of the conferences I have ever attended"

Fighter Mom™ Friday Program

Navigating Through the Pain and Frustration of Childhood Disability or Illness

Fighter Mom™ Panelists
  • Steve Eichenauer, Partner, Public Strategies Washington
  • Louise Raymond, Senior Director of Global Corporate Responsibility, McGraw-Hill Companies
  • Alex Mackenzie, M.D., Ph.D, Director of the Children's Hospital of Eastern Ontario Research Institute
  • Janice Schacter, Chair of the Hearing Access Program: A Consortium of The Alexander Graham Bell Association for the Deaf and Hard of Hearing, The League for the Hard of Hearing, and Hearing Loss Association of America
  • Diane Goetz, Director of Patient and Professional Advocacy, PTC Therapeutics
  • Nancy Jeffrey, Senior Editor, People magazine
Toy Industry Foundation Panelists
  • Ellen Metrick, Toy Specialist, National Lekotek Center
  • Dr. Steven Kanor, Founder and President, Enabling Devices
  • Amy Jaffe Barzach, Founder and Chief Inspiration Officer, Boundless Playgrounds®; Author, Accidental Courage, Boundless Dreams

Morning

8:00-8:45 - Introduction to the Fighter Mom™ Program
Helping parents navigate their way through the pain and frustration of fighting a childhood disability or illness

8:45-10:00 - Fighter Mom™ Panelist Presentations

10:00-10:30 - Coffee Break

10:30-12:00 - Fighter Mom™ Panelist Presentations

Afternoon

12:00-1:30 - Lunch; celebrity guest speaker Catherine Crier

1:30-1:45 - Coffee Break

1:45-2:30 - "What Fighter Mom™ Can Do For You"
Presentation by Martha Slay, President, FightSMA

2:30-3:00 - "Hearing from the Fighter Mom™ Friday Attendees"

3:00-3:30 - Toy Industry Foundation Introduction

3:30-4:45 - Toy Industry Foundation Panelist Presentations
Exploring play and its benefits to children confined by physical and developmental barriers

5:00 - Fighter Mom™ Charge and Commission
Chart a course to make change

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