Fight SMA Chapter: Fight SMA Alabama
Madisyn McGee Kemp
September 8, 2004 - March 21, 2008
Our hearts go out to the Kemp family.
"Madi has fought a strong fight for over 3 years now but as we knew going into this fight it was bigger than us. The joy and gifts that she brought to us can never be taken away despite this horrible disease. We ask all of you to continue lifting us up in prayer and keep fighting to one day defeat SMA."
-- Brandon and Patti Kemp, and little sister Bryanna
www.madisynkemp.com
Past Events:
Third Annual Madisyn Kemp Memorial Golf Tournament
Friday, September 26, 2008
Meadows Golf Club
For more information, visit www.madisynkemp.com or click here.
Register for the tournament at www.madisynkemp.com or print a registration for by clicking here.
Proceeds from this tournament will benefit SMA research and families like Madisyn's who are directly affected by SMA.
Birmingham's SMAsquerade 2007
February 17, 2007 at 7:30 p.m.
Patron's Party starts at 6:30 PM
Ted's Garage
2309 5th Avenue South
Birmingham, Alabama
Press:
The Birmingham News: A tiny angel flies home (3/08)
WBRCTV Fox 6: Family Health: Madison Kemp/SMA Fundraiser (2/07)
The Birmingham News: Ocean hopes to make waves for spinal muscular atrophy (4/05)
In memory of and love for Amanda
April 13, 1999 - June 3, 2006
It is with great sadness that we inform the FightSMA community that Amanda Stein, the daughter of Amy and Scott Stein of Birmingham, Alabama, passed away. Amanda was on vacation with her family in North Carolina when she died.
Amanda, who had her seventh birthday in April, was diagnosed with Type 1 SMA when she was five months old. Amy has written that her beloved daughter Amanda has taught her so much about life and "the meaning of family and friendship."
The FightSMA community joins all of Amanda's family and friends in expressing our love and deepest sympathies to Amy, Scott, their son Jake, and their daughter Melissa.
The Stein Family
 Amy and Scott Stein talk with Dr. Alex MacKenzie and Congressman Patrick Kennedy during the 2007 FightSMA Annual Conference |
 Amy Stein and Kristin Avis at the 2005 FightSMA Annual Conference |
The Kemp Family Brandon and Patti Kemp at the 2005 FightSMA Annual Conference |
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