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Fight SMA Chapter: Tori's Buddies, FightSMA Canada

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Tori Lacey, 2009
Tori Lacey, 2009
Shawn and Tracy Lacey
71 Old Kingston Road, Suite 143
Ajax, Ontario L1T 3A6
Canada

Tel: (905) 666-1002
Email: Click here to email Tori's Buddies/FightSMA Canada

Past Events:

Cartwright's Capers 1st Annual 5K Run/3K Walk
Date: Sunday, October 4, 2009 (Rain or shine)
Start time: 11:30am
Place: Ajax Waterfront, Ontario
Not your normal 5km run, no clocks, just a fun run, maybe a bit wacky as it was decided we would run with capes (this is optional however), thus the "Capers." Everyone is welcome, no cost to run, please sign-up and donate (if you wish), charitable receipts will be given.

For more information, click here.

10th Annual Gala
Casino Royale
CML Healthcare Casino Gala to Fight SMA

FightSMA Canada Gala

Date: September 26, 2009
Time: 7:00 PM
Place: Distillery District Fermenting Cellar

Saturday, September 26, 2009 was a spectacular night in Toronto and an even greater success for FightSMA's Canadian chapter Tori's Buddies.

A Casino Royale theme transformed the Fermenting Room at Toronto's Historic Distillery District. It was a great room, and the company even better. A heartfelt thank you to all of the 300 supporters who attended the 10th annual FightSMA Canada Gala. It was a "full house" ultimately "betting" that we will one day "hit the jackpot" and find a cure for Spinal Muscular Atrophy (SMA). We know that thanks to these supporters, we are raising awareness and the needed funds for the research that will get us to that goal. CML Healthcare LogoMany thanks to our lead Sponsor CML Healthcare Because of the generous donors, we have surpassed a very impressive $175,000 so far, and we are still counting. and our other sponsors Wilson Truck Lines, Paramount Pallet,TD Securities and PWC. We hope to see you all again next year.

The pictures are fabulous and all the fun can be viewed at www.hadaball.com. Just click on "Events," then select "SMA Gala."

A heartfelt "Thank You!" from Tracy, Shawn and the FightSMA Board of Directors.

9th Annual Gala: SMAsquerade
When: September 27, 2008
Where: The Distillery District in downtown Toronto
Time: 7:00pm - midnight
Cost: $125 per ticket. To purchase tickets, email or call 416-319-7593.
Attire: The dress code is formal, not in costume.

Corporate Sponsorship
$1,000 corporate sponsorships opportunities available. This sponsorship will include a tax receipt, a half page in the gala book, company logo in the video presentation loop, and a poster to be displayed in the room if provided by the sponsoring company. Email or call 416-319-7593 if you would like to become a sponsor.

FightSMA Canada SMA Conference
Saturday, November 10th
8:00 a.m. - 4:00 p.m.
Bloorview Kids Rehab
150 Kilgour Road, Toronto

Click here for the registration form and agenda.

Please register by October 15th. The registration cost is $30.00 for up to 2 parents or 1 professional. Refreshments and lunch included. Unfortunately, we will be unable to provide childcare for this conference.

Scheduled speakers include:
  • Dr. John Bach
  • Brian Weaver
  • Dr. Alex MacKenzie
  • Dr. Ben Alman
  • Pat McKeever
Topics on the Agenda include:
  • Respiratory Care
  • Research Update
  • Orthopedic Issues
  • Coping Strategies

BBQ - Hosted by DirectBuy
On June 16, 2007, DirectBuy helped Tori's Buddies raise 10,000 dollars by hosting a BBQ day at their store.

Click here to read DirectBuy's Press Release about the event

About DirectBuy
For more than 35 years, DirectBuy has been showing thousands of consumers unparalleled ways to save as they shop for virtually everything for in and around their homes - from furniture, carpet and flooring, and custom window treatments, to kitchen and bath cabinets and fixtures, appliances and much, much more. DirectBuy enables members to purchase most every product offering from more than 500 of the most popular major brand name manufacturers and their authorized suppliers at over 130 showrooms across North America.

At DirectBuy you're not limited to what a particular store offers. In most cases you have access to the complete manufacturer's line. That type of selection can take your design to a whole new level. In case you've never experienced it, the power and enjoyment of nearly unlimited choices is an amazing thing. It's even more amazing when it costs you less.

With the help of a DirectBuy service representative, you can decorate, furnish or remodel your entire home - all in one location and easier than ever before. Design, delivery and installation services are all available at your local DirectBuy design center. This is the smart way to shop - where members have access to confidential insider pricing. They no longer pay the store mark-ups - just the price the manufacturer or authorized distributor will sell the product for. Join the hundreds of thousands already in the know. Stop paying retail and start buying like the insiders do. To request a "Free Insider's Guide to Buying Direct" and a Visitor's Pass to learn more about the superior value and benefits of a DirectBuy membership, visit www.directbuy.com or www.directbuycares.com.

8th Annual Gala Event
When: May 5, 2007
Where: United Steel Worker's Hall, Sudbury, Ontario

Texas Hold'em Charity Tournament
When: Saturday, November 4, 2006
Where: Whitby, Ontario

7th Annual Auction Gala
When: April 1, 2006
Where: Crystal Fountain Banquet Hall, Markham, Ontario
Live music by Tom Hayes and the Twisters, as well as a live auction, a silent auction, door prizes, and raffles.

SMAsquerade BBQ
October 22, 2005
A terrific success, the event was hosted by Tom Hayes of CFTO.

Press:

Press Release Newswire: DirectBuy of Toronto North Celebrates 10 Years of Member Service - DirectBuy's Markham showroom to host a celebration and charity auction for FightSMA, a charity fighting Spinal Muscular Atrophy (June 14, 2007)

The Toronto Sun: For the love of Tori (November 19, 2001)

The Lacey Family

Tori, 2009
Tori, 2009
Tori, 2006
Tori, 2006
 

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