Fight SMA Spinal Muscular Atrophy Guidebook
*Spinal Muscular Atrophy is the leading genetic killer of children under two.
The pages linked above contain the most up-to-date information available about spinal muscular atrophy, or SMA. Much of it is prepared for Fight SMA by Dr. Robert T. Leshner, M.D., Professor of Neurology and Pediatrics at Children's National Medical Center. Think of it as your field manual as you confront the disease.
In addition to our Scientific Advisory Committee, we have also created a list of leading pediatric neurologists and other specialists recommended by our scientific advisors and SMA families.
After you have reviewed this information, please let us know if there are ways we can expand these resources to better serve you in the future.