Spinal Muscular Atrophy (SMA) Multimedia
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Welcome to the Fight SMA Multimedia page. Below is a collection of audio, video, and images about spinal muscular atrophy and Fight SMA events.
Invisible Heroes: The Fight Against Spinal Muscular Atrophy
Click below to view the full 13-minute version of Invisible Heroes, the video shown on Fight SMA's front page. This gut-wrenching video was produced by a brave family about their young son Billy's fight against spinal muscular atrophy.
To download this video (112 mb) to your computer, click here.
Thank you to Billy's family for making this incredible video.
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Fighting Back Webisodes
Coming soon, FightSMA will officially launch a new web-based program called "Fighting Back" which will provide advice and share stories from doctors, families, and more. In the preview of the pilot episode, Drs. Leshner and MacKenzie join forces to answer questions from the SMA community regarding nutrition, exercise and more. The full-length "Fighting Back" webisodes will also feature videos sent in from families across the country, profiling and celebrating the extraordinary miracles happening every day in the lives of SMA children.
We would like to thank Metro Productions, our partners in this fight, for their generous gifts of time and expertise in the pro bono production of these videos. If you'd like a video of your child featured in an upcoming webisode of "Fighting Back," send your video file or link to videos@fightsma.com.
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Fighting Back Podcast
Fighting Back Podcast provides information for and inspirational stories about people and families fighting serious or incurable diseases. It's produced for Fight SMA and Fighter Mom. What is a podcast? It's a web-based audio series (think radio). You can listen online, or download episodes to your computer or mp3 player. Listen to one of the latest episodes by clicking the "play" button on the Flash-based mp3 player below.
To hear older episodes or to subscribe on iTunes or other services, use the Fighting Back Podcast Feed. You can also read Fighting Back episode notes and listen to shows on the Spinal Muscular Atrophy Blog. If you have an inspirational story that you think Fighting Back Podcast should tell, please contact us.
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FightSMA Videos YouTube Channel
A sampling of the videos available on the FightSMA Videos YouTube Channel