Spinal Muscular Atrophy (SMA) Multimedia

>>Click here to return to Fight SMA’s Spinal Muscular Atrophy Guidebook

Welcome to the Fight SMA Multimedia page. Below is a collection of audio, video, and images about spinal muscular atrophy and Fight SMA events.

FightSMA’s YouTube Channel | Invisible Heroes | Fighting Back Podcast


FightSMA Videos on YouTube

Among the many SMA videos we’ve posted you YouTube are a new series of interviews conducted at the FightSMA 2011 Annual Conference. They were recorded and edited on a pro bono basis by Metro Video Productions.

The Fighting for a Cure Series
Dr. Chris Lorson of the University of Missouri-Columbia and Dr. Alex E. MacKenzie of the Children’s Hospital of Eastern Ontario discuss the current landscape of SMA research:

Additional video series from the 2011 FightSMA Annual Conference:

Dr. Craig P. Eberson, M.D., Pediatric Orthopedist at Hasbro Children’s Hospital discusses bone development and SMA:
Video 1 | Video 2 | Video 3 | Video 4

Dr. Nanci Yuan, MD DABSM, Pediatric Pulmonologist and Sleep Medicine Clinical Associate Professor at the Lucile Salter Packard Children’s Hospital at Stanford University discusses pediatric pulmonology and SMA:
Video 1 | Video 2 | Video 3 | Video 4

Erin Seffrood, Pediatric Clinical Nutritionist at the University of Wisconsin/American Family Children’s Hospital discusses pediatric nutrition and SMA:
Video 1 | Video 2 | Video 3 | Video 4

Several scientists who were in attendance at the 2011 annual conference weigh in on sleep issues and SMA:
Video 1 | Video 2 | Video 3

To view the Thriving with SMA LIVE! panel discussions from the
2011 FightSMA Annual Meeting, click here.

For more videos, visit the FightSMA Videos YouTube Channel

<< Back to the top of the page


Invisible Heroes: The Fight Against Spinal Muscular Atrophy

Click below to download the full 13-minute version of Invisible Heroes. This gut-wrenching video was produced by a brave family about their young son Billy’s fight against spinal muscular atrophy.

To download this video (112 mb) to your computer, click the image below, or click here.

Thank you to Billy’s family for making this incredible video.

<< Back to the top of the page


Fighting Back Podcast

Fighting Back Podcast provides information for and inspirational stories about people and families fighting serious or incurable diseases. It’s produced for Fight SMA and Fighter Mom. What is a podcast? It’s a web-based audio series (think radio). You can listen online, or download episodes to your computer or mp3 player. Listen to one of the latest episodes by clicking the “play” button on the Flash-based mp3 player below.

fighting-back-23-100428.mp3

To hear older episodes or to subscribe on iTunes or other services, use the Fighting Back Podcast Feed. You can also read Fighting Back episode notes and listen to shows on the Spinal Muscular Atrophy Blog. If you have an inspirational story that you think Fighting Back Podcast should tell, please contact us.

<< Back to the top of the page