Spinal Muscular Atrophy (SMA) Multimedia

>>Click here to return to Fight SMA’s Spinal Muscular Atrophy Guidebook

Welcome to the Fight SMA Multimedia page. Below is a collection of audio, video, and images about spinal muscular atrophy and Fight SMA events.

FightSMA’s YouTube Channel | Invisible Heroes
 


 

 

FightSMA Videos on YouTube

 

Among the many SMA videos we’ve posted you YouTube are a new series of interviews conducted at the FightSMA 2011 Annual Conference. They were recorded and edited on a pro bono basis by Metro Video Productions.

The Fighting for a Cure Series
Dr. Chris Lorson of the University of Missouri-Columbia and Dr. Alex E. MacKenzie of the Children’s Hospital of Eastern Ontario discuss the current landscape of SMA research:

Additional video series from the 2011 FightSMA Annual Conference:

Dr. Craig P. Eberson, M.D., Pediatric Orthopedist at Hasbro Children’s Hospital discusses bone development and SMA:
Video 1 | Video 2 | Video 3 | Video 4

Dr. Nanci Yuan, MD DABSM, Pediatric Pulmonologist and Sleep Medicine Clinical Associate Professor at the Lucile Salter Packard Children’s Hospital at Stanford University discusses pediatric pulmonology and SMA:
Video 1 | Video 2 | Video 3 | Video 4

Erin Seffrood, Pediatric Clinical Nutritionist at the University of Wisconsin/American Family Children’s Hospital discusses pediatric nutrition and SMA:
Video 1 | Video 2 | Video 3 | Video 4

Several scientists who were in attendance at the 2011 annual conference weigh in on sleep issues and SMA:
Video 1 | Video 2 | Video 3

To view the Thriving with SMA LIVE! panel discussions from the
2011 FightSMA Annual Meeting, click here.
For more videos, visit the FightSMA Videos YouTube Channel

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Invisible Heroes: The Fight Against Spinal Muscular Atrophy

 

Click below to download the full 13-minute version of Invisible Heroes. This gut-wrenching video was produced by a brave family about their young son Billy’s fight against spinal muscular atrophy.

To download this video (112 mb) to your computer, click the image below, or click here.

Thank you to Billy’s family for making this incredible video.

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